After being diagnosed with breast cancer in April 2015, genetic testing revealed I had the CDH1 gene mutation. In June of that year, I chose to have a double mastectomy rather than a lumpectomy as anticipated with the original diagnosis. I found no local medical professional who knew anything about CDH1 and only got referred […]
The Faces of Stomach Cancer honors those battling stomach cancer, celebrates survivors, and remembers those we have lost.
I am Juan Manuel (44) from Argentina. My father died in 2013 (Gastric Cancer) and I knew I had the CDH1 gen mutated in 2016. I past through a total gastrectomy in 2017 and I wrote all the journey in my blog (IN SPANISH) I am living a plenty life as I did before the […]
I’m a mother, a friend, a sister, a daughter, and a devoted physician who has become the patient. After a series of serendipitous events, I was the first person in my family to be discovered to have a rare genetic mutation called Gastric Adenocarcinoma and Proximal Polyposis Syndrome (GAPPS). Like other hereditary gastric cancers, this […]
My name is Jon Grossman, and I want to thank you for all that you have done for me, my family, and my fellow CDH1 mutation carriers. In 2016, we found out that a CDH1 mutation runs in our family. Now, 4 of us have had total gastrectomies and are doing great. I published a […]
I chose the name “My Pink Genes” because, for one, pink is my favorite color, and for another, I was diagnosed with a highly aggressive form of stage 3a breast cancer in 2018 at 32 years of age (grade 3 invasive lobular carcinoma – pleomorphic type ER-, PR+, HER2- in cancer speak). Pink being the […]
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