My name is Jon Grossman, and I want to thank you for all that you have done for me, my family, and my fellow CDH1 mutation carriers. In 2016, we found out that a CDH1 mutation runs in our family. Now, 4 of us have had total gastrectomies and are doing great. I published a […]
I chose the name “My Pink Genes” because, for one, pink is my favorite color, and for another, I was diagnosed with a highly aggressive form of stage 3a breast cancer in 2018 at 32 years of age (grade 3 invasive lobular carcinoma – pleomorphic type ER-, PR+, HER2- in cancer speak). Pink being the […]
‘Go Without Your Gut.’ My Journey Of Losing My Stomach Due To Hereditary Diffuse Gastric Cancer Syndrome. – Dylan Davison
When you think of gastric cancer you probably don’t picture healthy sisters in their early 30’s, but we are the faces of gastric cancer. Our family history is riddled with stomach, colorectal, and breast cancer, so at the urging of our doctors we underwent testing to determine if there was a genetic component at play. […]
In the five years that I spent on the Board of Directors of No Stomach For Cancer, and as a member of our support team, I have talked to others who carry the CDH1 mutation about countless issues…. genetic testing, upcoming surgery, nutrition, life without a stomach… One of the biggest challenges, though, is not […]
Karen Chelcun’s journey through total gastrectomy at the age of 51. Karen lives in Madison WI.September 2008
